SELF-HELP GROUP AND THE QUALITY OF LIFE OF PATIENTS WITH MULTIPLE SCLEROSIS - PILOT STUDY

Cent Eur J Nurs Midw 2015;6(4):336-342
doi: 10.15452/CEJNM.2015.06.0025

Anna Eliášová, Ľudmila Majerníková, Anna Hudáková, Mária Kaščáková

Department of Nursing, Faculty of Health Care, University of Prešov in Prešov, Slovakia

Abstract

Aim: The goal of the pilot study was to compare the quality of life of patients with multiple sclerosis in the Presov region with or without the support of a self-help group. Design: The character of this pilot study on patients with MS was related to the use of self-help groups and their impact on the assessment of the quality of life of the respondents, with the help of a questionnaire (WHOQOL-BREF). Methods: The research was carried out in the Prešov region with the help of the standardized WHOQOL-BREF questionnaire. Ninety-one patients with MS participated in the pilot study (46 respondents attended a self-help group and 35 did not). Results: The groups, when compared, aided by the statistically evaluated WHOQOL-BREF domains, were found to show significant differences in their evaluation of quality of life in three domains: domain one: physical health; domain two: surviving; domain three: social relations. Better scores were achieved in these domains by those who attended a group. In the physical sphere, we noticed significant differences in sleep quality, and sexual satisfaction (p < 0.001), while in social and economic areas, there were significant differences in satisfaction with personal relationships (p < 0.001), and economic circumstances (p < 0.01), self-contentment (p < 0.01), and coping with negative feelings (p < 0.05). Conclusion: Patients with multiple sclerosis can live normal lives provided they are supported by their families, friends, health care professionals, and self-help groups.

Keywords: multiple sclerosis, quality of life, health care, self-help group.

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Updated:: 04. 12. 2015


 
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